It seems like it was a few lifetimes ago when I was diagnosed with fibromyalgia.
Such a quiet and “good-looking” disease, I am surprised this society has not gotten much farther in figuring out what to do with it.
I do think I cope very well, it is mostly annoying the heck out of me. I think Cindy O’Neil said it just wonderfully (Vitality Magazine, 2001):
” Accepting my physical limitations has been the most distressing issue to deal with.”
You were so used to being able to do SO much, ALL the time, and now of a sudden, seems like you need a vacation after hard labor like, say, eating breakfast… now THAT is annoying and disturbing.
I don’t have to tell anybody all the shit that goes on with fibro, anybody can google that. Here is what I found helps some:
Walk! Walk every day, after 20 minutes you WILL feel better and walk some more. The more you stay still, the more you’ll hurt. Yet, if you walk “too much”, you’ll hurt more
Don’t eat crap, and again, we all know what that is. Eat unprocessed foods, that about covers it.
Qigong and TaiChi, helps, a LOT and can also be frustrating because you’ll want to do so much more and just can’t.
So then you have some “good days” and feel almost normal, yeah! and do more, and pay more a few days later…
So far I think what helps most with playing TaiChi is that you learn to relax (a much different relax than slumping in front of the TV..). Relaxing seems easy, but believe me, its the hardest thing I have ever attempted to allow to happen. (I didn’t write “do” on purpose). You learn to let go, not mind, and, well, relax. Your muscles, your tendons, your mind, everything.
To say we “work” on that sounds a bit crazy, but it is hard work to try to relax. Re-align body and mind.
This doesn’t “cure” fibro but it sure makes it easier to live with it. That is if you can ignore that everybody else in class seems to have more stamina and an easier time doing everything and probably doesn’t hurt ALL the time either… but even that, you learn to let go and not mind….just feels weird sometimes.
Perhaps this will one day relive me of this incredible over-sensitivity for noise, light, touch, smell, etc. everything is exaggerated and, well, hurts! makes you nervous, distracted, annoyed…
Which reminds me, time for a hair cut, my hair is longer than a couple of inches again and, yup, hurts! especially at night. This is so pathetic, anybody wanna laugh with me?